A mixed pot: Make a wish, side effects and play dates

Great news:

We received exciting news the other day: Evelyn will be granted a wish through Make A Wish! A good friend (Aunt Kari)  is a volunteer with the organization and we are hoping she can be our grantor. I am pretty sure there will be a princess or two involved in Evelyn's wish :) We are so excited. This is another way we can turn all of this terribleness into a positive experience for our little E.

Side effects:

Her side effects seem to be building. We keep getting mixed messages about what to expect. I guess all kids are different and there may be some psychology they are playing with telling us early on that it won't be so bad or it won't build. We did appreciate it at the time. Now it is a little frustrating. 

She has had several weeks of the "V" drug in a row. This has the neuropathy side effect. She has been saying more and more that her feet and hands, neck and throat are hurting. Not tingling, hurting. It isn't slowing her down any, but she opens and closes her hands and moves her fingers around like she is trying to figure out the feeling she is experiencing. We can be thankful she isn't waking up in the night screaming in pain... apparently a lot of kids do. She says her stomach hurts. We think this is the scar tissue pulling and itching. Yesterday she started saying her chest bone hurts. That is probably the "A" drug. It is harder on the bones. The last week she has been much more tired than previous weeks. Hopefully she'll bounce back this next week. Through it all, she is still a smily, sassy little girl!

Play:

We are trying to be more sensitive to letting her go places and have friends over. The other day when she said her friends didn't want to play with her because she was sick, my heart just ached. We took her for a quick trip to Target to get a toy and to Lowe's to pick out flowers. We went to play at the twins house earlier in the week. And we had two play dates today! Molly and then Lilly came to play. E was so pooped. She took a 3 hour nap between visitors.

Funny:

I forgot to write this awhile ago... At one of our doctor visits, she stepped on the scale and said "Do I have good numbers?" (We talk a lot about eating well to have good numbers at the doctor). "Yes, you have great numbers!" E says to the nurse, "I have good numbers because I've been eating lots of green beans!"